• i_love_FFT@lemmy.ml
    link
    fedilink
    arrow-up
    1
    ·
    1 month ago

    For me to be a better friend by better understanding his new limitations…

    He already has a good support network, they organised a fundraiser to get him an electric wheelchair, which is awesome! But at first I didn’t understand why it was helping him, because I don’t know enough about the condition. 🫣

    • Neurologist@mander.xyz
      link
      fedilink
      English
      arrow-up
      2
      ·
      edit-2
      1 month ago

      This channel has a bunch of short (5 mins long videos) about ME to educate people.

      There’s also a slightly outdated (but still worth the watch) oscar nominated documentary about it, which has been made free and put on youtube recently It’s Unrest by Jennifer Brea

      One of my patients also runs this excellent website with a bunch of resources about the disease.

        • Neurologist@mander.xyz
          link
          fedilink
          English
          arrow-up
          1
          ·
          28 days ago

          if youve got to any, could you tell me what you think? It’s always useful to know what I should recommend to my patients to show their friends and family.

          • i_love_FFT@lemmy.ml
            link
            fedilink
            arrow-up
            1
            ·
            26 days ago

            I’m mostly a “wikipedia reader” type of person, so I don’t have good pop sci sources to recommend… Sorry!